Abstract:
Fibrodysplasia Ossificans Progressiva, also known as FOP, is a devastating and debilitating genetic disease characterized by the formation of heterotopic bone. By exploring the pathophysiology, current treatments, and recent research we take an in-depth look at this rare and unfamiliar disease. Through application of the nursing process, nursing care of patients affected with FOP is discussed in the second half of the paper. Even though this is an incredibly rare disease, awareness regarding FOP needs to be brought to the forefront. Knowledge is power. Only through education can people be armed with the knowledge needed to take proper care of a person affected with Fibrodysplasia Ossificans Progressiva.